Published January 21, 2022 | Version v1.0.0
Study Design Open

Considerations for Capturing of Race, Ethnicity, and Gender Data

Abstract

The Department of Preventive Medicines (DPM) Working Group on Response to Structural Racism in Research surveyed multiple data dictionaries within DPM and beyond (e.g., Feinberg School of Medicine [FSM], United States Census, and the National Institutes of Health [NIH] reporting requirements). We assessed common practice and aggregated ideas from these sources to develop these considerations for best practices when capturing relevant demographic variables in Human Subjects Research. These considerations serve as guidelines and recommendations. They are not binding in any way. We recognize research studies each have unique needs, and there is no single set of best practices that would apply to all studies.

Files

Data_Capture_Tips_v2.0.pdf

Files (451.7 kB)

Name Size Download all
md5:9e0210095b8d914521bfdf83efce8753
451.7 kB Preview Download

Additional details

Related works

Is related to
10.18131/g3-5sa2-wb83 (DOI)

Dates

Created
2022-01-21
When the item was originally created.